tag:blogger.com,1999:blog-7897762048118579351.comments2022-03-24T14:11:55.955-07:00Arachnoid Cyst SupportAnonymoushttp://www.blogger.com/profile/12521868100622588864noreply@blogger.comBlogger37125tag:blogger.com,1999:blog-7897762048118579351.post-85495366787963548712015-07-17T10:01:33.848-07:002015-07-17T10:01:33.848-07:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-13512835256896623612015-07-03T15:29:59.321-07:002015-07-03T15:29:59.321-07:00Maria,
You have gone where no one should have to....Maria, <br />You have gone where no one should have to. Your perseverance, courage, attitude are to be commended as this is what many people lack. The most difficult thing to do can be to learn and go forward, "Never Give Up...Never Surrender", how many times I have to tell this to myself.<br /><br /><br />Please feel free to contact me if you can or wish to <br />Bill@MotionMessage.comAnonymoushttps://www.blogger.com/profile/09112660328542806327noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-37611278759147490882015-05-11T12:13:34.153-07:002015-05-11T12:13:34.153-07:00Hi
My name is Lloyd and I was diagnosed with a...Hi <br /> My name is Lloyd and I was diagnosed with an arachnoid cyst apprx 2 years ago. I had test (CT and MRI) after feeling a tingling in my head similar to that of my foot falling asleep. I was told the cyst should be asymptomatic and I should never concern myself with it again. I now have an occasional slight pressure in the back of my head that is starting to occur more frequently. I can easily withstand the pressure as I would just describe it as annoying at the worst. What concerns me is that I feel it most when I get done with vigorous physical activity. I have backed off on activities that I enjoy as a result of being worried that they may putting my health at risk. I do have a doctor's appointment coming up in a few weeks. My question is do you think vigorous physical activity that may even result in hitting my head is putting me at unnecessary risk? Thank you in advance.Lloydnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-38113232972578038062015-03-31T14:08:26.064-07:002015-03-31T14:08:26.064-07:00I had a cyst on the back of my brain it caused ter... I had a cyst on the back of my brain it caused terrible pain it started when I was in my twenty's. I am 57 now have had 5 brain surgeries and each one seems to hurt worse than the previous one. In my thirties my headache started to become worse. In my forties they got even tougher at least one a day but when I got to be 54 I could no longer function every doctor I had seen for the ten previous years I complained about headache. There answer was it was stress even though I informed them I had a stress free life. there reply was everyone has stress. Well when I reached the end I stopped taking all my other meds cholesterol, blood pressure thyroid went to my doctor had the tests taken and told him I wanted to die. He finally ordered an MRI for my head he called the next week and asked me to come in. He apologized for not listening to me about my headache for thge last 3 years and told me I had an extremely large cyst on the back of my brain that was moving my brain forward and down to the right.<br />I had my first surgery to remove my cyst it was terrible they cut to far down into my shoulder muscle and I had to wear a negative vacuum pump for 7 weeks. One week after getting the pump taken off I took out my lawn mower to cut the front yard the vibration did something to my scalp and woke up the next day with a large lump on the back of my head.<br /> O yea there also the nausea nothing really like it when the nurse hands you a little bag and you launch it across room. <br />Seven weeks later my mother came down to visit me I live in Florida. Well wouldn't you know it the tube going to my brain got infected went right to my brain emergency surgery on a Sunday afternoon the surgeon told my girlfriend he did not think I would survive the night the infection was massive across my whole brain. Well I woke up at around 3am begging for my handgun so I could shot my head off all I got was a bag of ice. I now had a tube coming from my head to some kind of machine that was suppose to keep the fluid in my skull balanced well none off the nurses new how to use it so I read the directions and explained it to them. two weeks later I was taken in on a Friday so they could put in a new permanent drain in my brain. the one that was in there seemed to be a hiding place for the infection. Well Sunday evening came and a new nurse came into my room and I told Him to watch out for the tube coming from my head to the machine ten seconds later my head was drug across my pillow the dope had walked right into the tube. I asked him if he had heard me what I had told him he said he had so I asked him why it took only ten seconds to slam into the tube DUH then he walked into again I went Ballistic on him I looked at the tube which now the fluid had blood in it which it never had before he said its only pink that OK. I told him to call my doctor and tell him what happened he said no I asked my girlfriend to give me my cellphone I had his number. About an hour later a new nurse came in never so the Bull again. they took me for a CT I feel asleep woke up around 4am felt someone in my room my doctor told me he had to put the drain back ins came its right position. Tears out of my eyes it had only been2 days since they were last inside my head it was bad. Ten days later I had another surgery to put the tube inside and 3 days later I was out of the hospital. Two days later I was back in again the tube in my stomach cavity was to short and when I stood up it became disconnected. After 16 months of not feeling like I was getting any better I stopped at a farm stand that sold local honey started putting it on my toast with cinnamon 2 months later I started to come back to life its been 3 years since my last surgery i will never be the same as I was i still get headache daily some are pretty bad but most are just a pain.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-60981864105871918222013-07-30T07:08:20.059-07:002013-07-30T07:08:20.059-07:00Thank you. Thank you everyone for your sweet comm...Thank you. Thank you everyone for your sweet comments and well wishes. I will keep you posted and thank you for posting all of your positive, good thoughts for me.Anonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-38141315517753545012013-07-22T08:49:16.816-07:002013-07-22T08:49:16.816-07:00My MCS sister Kathryn shared about you http://alle...My MCS sister Kathryn shared about you http://allergictolifemybattle.wordpress.com/2013/07/21/its-all-in-your-head/ <br />Just wanted you to know you are in my thoughts & prayers & I care!!!! Sonda Bruce<br />http://sondasmcschatter.wordpress.com Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-52513007998170782562013-06-18T09:26:41.522-07:002013-06-18T09:26:41.522-07:00Hi,
So sorry to hear about your troubles. Sounds...Hi,<br /><br />So sorry to hear about your troubles. Sounds so much like what I went through. There are many things they can diagnose you with and miss the "real" issues....the cyst. So many doctors want to say that these brain cysts do not cause problems. I got that so much and it was so clear that it was the issue. If you read my book, "It's all in Your Head," I personally think you will see a number of similarities with me and my situation.<br /><br />http://www.amazon.com/Its-Your-Head-Maria-McCutchen/dp/1613460716/ref=sr_1_1?s=books&ie=UTF8&qid=1371572397&sr=1-1&keywords=it%27s+all+in+your+head+maria+mccutchen<br /><br />I don't know why so many doctors are so closed minded to the fact that these cysts can and do cause problems. I began to deteriorate quickly too, once the symptoms started. It was amazing and more amazing that I could see the obvious but no doctor could, or "would." If you have to....go doctor to doctor. See as many neurosurgeons as you need to, to find the one that understands brain cysts and will help you. Sounds like you may need a fenestration or something. Please keep me updated. Drop me a note and one last thing is to keep a diary of your symptoms. That will help you and the doctors to see a pattern.<br /><br />Good luck and do not give up! Keep me posted.<br /><br />You will be in my prayers.<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-73634389776759537562013-06-17T17:15:33.910-07:002013-06-17T17:15:33.910-07:00Hi, I have a subarachnoid cyst on the left frontal...Hi, I have a subarachnoid cyst on the left frontal lobe measuring 40.4mm x 32mm. Like you Maria I have recently started to get numbness in my head and arms at night and sleep apnea. I also get aura's and have been diagnosed with epilepsy (not sure why at 46yrs old). The Neurosurgeon refused to see me saying that the cyst was not causing my symptoms and that the epilepsy can just start???? I am deteriorating now especially as the severe headaches have started. Please advise me as I am at a loss.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-36257421855717610982013-05-10T04:43:31.640-07:002013-05-10T04:43:31.640-07:00Hi,
I wanted to check in to see how you are. Have...Hi,<br />I wanted to check in to see how you are. Have doctors done anything for you yet, or decided on anything? When my symptoms first started, they were very vague, too. I was never quite sure if what I was feeling was a symptom of something, or what. I talk about that in my book, "It's all in Your Head." Unfortunately my cyst was too large to remove. I had mine fenestrated-where they go in and knock down all the walls that develop inside and block the flow of CSF. The fluid gets trapped inside the walls and causes the cyst to grow. <br /> <br />Please send an update. I'd be interested to hear where things stand with your cyst. Take care and praying you get answers and relief.<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-89385812437732426262013-05-06T07:50:01.798-07:002013-05-06T07:50:01.798-07:00Hi, I was recently diagnosed with an arachnoid cys...Hi, I was recently diagnosed with an arachnoid cyst behind my cerebellum. At first (about 5 years ago) I was told that this was not a big deal. I am having really vauge symptoms, pain, IBS, headaches, etc. and my new neuro thinks that my cyst could be the problem. It's almost 2 inches big and we are unsure yet if it is growing. Did you end up having surgery? If so, how was it? I have read some interesting articles about cyst removal and how it does actually help with symptoms. I don't understand why doctors are not looking more into cysts causing weird symptoms. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-59013856360997468032013-04-25T23:33:44.089-07:002013-04-25T23:33:44.089-07:00My name is robin im 41yrs old grandma of 5 girls. ...My name is robin im 41yrs old grandma of 5 girls. I first was diagnosed having a blood clot in my left arm they put me on warfin i started getting migranes and now have a prostier fossa aracnoid cyst to the right of the midline needless to say im very scared i have along with migranes muscle weakness. Have a apt with neoroligst this week keep me n your prayers please. Thank u for all ur support n prayers robinhttps://www.blogger.com/profile/13898373589304128092noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-2340429025474705532013-04-07T14:38:06.574-07:002013-04-07T14:38:06.574-07:00Hi Maria, my Name is Jessica, I have an arachnoid ...Hi Maria, my Name is Jessica, I have an arachnoid cyst too but mine is in the front right side of my head, I had Surgery to drain it a little under 2 years ago now. I am 18 and am concerned about how quickly my cyst might grow back as my surgeon said it more than likely would due to the fact that it was stage 3 .. Do you have any information for me as I'm struggling to find my own, and am worried because it has already given me Epilepsy...Anonymoushttps://www.blogger.com/profile/13403860562527439158noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-73752017447747074672013-03-26T13:56:50.886-07:002013-03-26T13:56:50.886-07:00Hello,
I appreciate your book and website. I r...Hello,<br /><br /> I appreciate your book and website. I recently discovered them. I am 43 years old and recently underwent a hysterectomy. After the suregery my vision became blurred and I began to feel a great deal of pressure in my head. After visiting a neurosurgeon who has a great reputation in our area, he scheduled me for an MRI which did show an arachnoid cyst in the frontal left lobe of my brain. I had known about the cyst from the time I was 26 years old and have lived with no symptoms. The doctor said that I could have been born with it. He said that it is half the size of a pencil and should not be giving me and difficulty with vision etc. He stated that he does not want to have to operate on this because he would have to remove a portion of my skull and it would be very involved and not necessary. Yet, I am having pressure and vision issues. I am very scared, but my faith in God is extremely strong. He wants to wait a year and check the size to make sure that it is not growing. I'm curious to hear what you think of this?<br /><br />Sherry W.sherrynoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-87460666650852480142013-03-25T21:40:37.499-07:002013-03-25T21:40:37.499-07:00Hi Maria,
My name is Ashley, I was diagnosed wit...Hi Maria, <br /><br />My name is Ashley, I was diagnosed with an Arachnoid cyst in the back of my brain last year. I don't remember the specific location...I was in a great deal of shock when the neurologist told me. Apparently mine has just showed up recently, I had had an MRI done as a child due to head trauma and constant migraines that the doctor at the time thought was seizures. I've been experiencing a lot of very distressing and uncomfortable symptoms for a long time now and this neurologist continues to tell me it has nothing to do with the cyst. Your blog has brought me comfort and inspiration that I am NOT alone, and I can do something about this. I am waiting now to get into my second opinion appt with a different neurologist. *^_^* Thank you so much for sharing your story with everyone!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-85133518149057405432013-03-03T09:24:09.101-08:002013-03-03T09:24:09.101-08:00Hi,
I do not know if the other problems could be ...Hi,<br /><br />I do not know if the other problems could be the only reason for your symptoms. If you have a brain cyst, especially depending on the size, it could be playing a significant role in your problems. If it were me, I would be sure to be followed and monitored closely by someone who can get regular scans to monitor for growth in the cyst and other changes. Depending on where the cyst is growing, I do know others who have had trouble with seizures. Be sure to get a good neurosurgeon who is familiar with brain cysts and have him monitor you regularly. Keep a record of your symptoms (diary). This can help with monitoring changes and patterns. Keep me informed and do check out, "It's all in Your Head," my book and my story, that you may see other similarities with as well. You can find it on Amazon and wherever books are sold.<br /><br />Keep me posted and good luck to you. I understand the frustrations of living with a brain cyst!Anonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-12584665784374077542012-12-31T16:17:48.092-08:002012-12-31T16:17:48.092-08:00Hi,
Sorry for the delay in response. I am hangin...Hi,<br /><br />Sorry for the delay in response. I am hanging in there but still have a lot of issues. I am hopeful that this will be a better year. I have some things I want to do this year - healthwise - to help to get back to a better place and feeling better. So I am starting some things tomorrow (actually) and will keep a positive outlook that over time, I will get to feeling a little better.<br /><br />Tell me about yourself. Do you have a cyst?<br /><br />I wish you a healthy, happy and prosperous New Year. Thanks for checking in.<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-78453395775017347862012-11-17T02:13:53.032-08:002012-11-17T02:13:53.032-08:00How are you doing now? Did you have surgery?How are you doing now? Did you have surgery?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-40803715790465297372012-10-29T05:26:48.972-07:002012-10-29T05:26:48.972-07:00Hi,
How are you doing these days? Where does it ...Hi,<br /><br />How are you doing these days? Where does it stand with your cyst? I'm not sure I ever responded to the question about it being familial. Yes, it has been discovered that brain cysts "can" be hereditary.<br /><br />About the other diagnosis' you have been given....I am not sure to the extent that it is related to your other diagnosis', but brin cysts can affect things such as your affect, and thinking processes, even your persoality, so I do not know why it "couldn't be" that you could be diagnosed with a medical condition that you don't necessarily "truly" have when it is all "really" cyst related.<br /><br />Have things changed for you since? My cyst and brain conditions effects my "affect" and personality - no doubt. I see a big difference in my personality from before my cyst gave me trouble to after it started.<br /><br />Drop a note when you can. I hope all is well.<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-63999213031808853192012-07-31T17:53:58.236-07:002012-07-31T17:53:58.236-07:00Thank you for following and your kind words. I...Thank you for following and your kind words. I've been through a big move and haven't been able to be on top of things like I should, but plan on it now. Yes, do keep reading and learning. There was not this much information out there when I went through it all, and certainly not books with people's stories. So you may be interested in my book too, "It's all in Your Head." It's avail through Barnes and Noble and Amazon etc. You may find it some help to you with how to deal with your situation. Let me know.<br /><br />Take care and may God bless! I will look up some sites....what I typically do is just put in arachnoid cysts and see what pops up. A lot of reading and searching. So let me see which ones I would recommend today.<br /><br />Take care and God bless!<br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-57530775749238606682012-07-31T17:49:28.466-07:002012-07-31T17:49:28.466-07:00I pray for an angel on your pillow too. Sorry for...I pray for an angel on your pillow too. Sorry for the delay in response. Keep me updated, and do look into my book, "It's all in Your Head." You can get it through Amazon and Barnes and Noble, etc. You may find the story and info beneficial. At the very least, you will have some comfort knowing there are others going through what you are.<br /><br />Take care and keep me updated,<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-88952320803198402742012-07-31T17:46:17.924-07:002012-07-31T17:46:17.924-07:00You are welcome. Sorry about your daughter. Alwa...You are welcome. Sorry about your daughter. Always breaks my heart when it's children. Have you looked into getting my book, "It's all in Your Head?" It may be helpful to you for when you really start dealing with doctors etc. YOu can get it on Barnes and Noble, Amazon, through Tate Publishing. Many have found it helpful.<br /><br />Keep me informed. I wish you all the best and all the luck in getting the proper help for your daughter!<br /><br />MariaAnonymoushttps://www.blogger.com/profile/12521868100622588864noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-19358252189873030472012-07-23T21:49:05.971-07:002012-07-23T21:49:05.971-07:00Wow. You just described the same type of spells th...Wow. You just described the same type of spells that I have. Usually upon standing I get really dizzy and light-headed and have to hold on to the walls to avoid falling, spotty vision, start shaking, tingling and numbness in my arms and legs, and ringing in the ears. Usually when this happens I can get to a bathroom and throw up and then lay down and wait for my heart to stop racing out of control. The one time I couldn't, my symptoms developed into a seizure. My doctor maintains the belief that my symptoms and arachnoid cyst are unrelated and that it would be in my best interest to forget I even have a cyst. His words. This peeves me off to no end. I feel like he is belittling my symptoms and concerns. I pushed to get another mri this year in november to see if its grown at all. I guess we will go from there. :/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-61442980723805408012012-07-17T04:47:45.332-07:002012-07-17T04:47:45.332-07:00Hi Maria. My hats off to you for successfully batt...Hi Maria. My hats off to you for successfully battling this ailment. You are a brave warrior. kudos!.i am following your blog,thanx -http://bbanublog.wordpress.comAnonymoushttps://www.blogger.com/profile/04958279837983611074noreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-73327398651164542842012-07-01T15:32:42.781-07:002012-07-01T15:32:42.781-07:00Hello Maria,
Thank you for your very informative ...Hello Maria,<br /><br />Thank you for your very informative site. My 12 year old daughter has just been diagnosed with a PFAC as you have as well. I am trying to find alternatives to surgery if possible. I am only in the reading and learning stage but have found almost no info for natural ways to diffuse the cyst with time. Do you have any sites that may be helpful?<br /><br />Cheers,<br />Kathrinekatnoreply@blogger.comtag:blogger.com,1999:blog-7897762048118579351.post-74844556871789767892012-06-29T12:53:52.689-07:002012-06-29T12:53:52.689-07:00I'm sending you an award; you are one of my he...I'm sending you an award; you are one of my heros.Sorry Gnathttps://www.blogger.com/profile/05314151162104734712noreply@blogger.com